i have been reading MOTHER WARRIORS lately and this bit hit home for me...
"I have had a chance to be reaquainted with God. Not the God you meet in your Sunday best at church, but the God you meet on your kitchen floor at three in the morning.
There is no Ronald McDonald House for us, no wing at Saint Jude's to offer help, or even hope. The parents of a child with autism are left to go the road alone.
I am my son's full-time researcher, biochemist, pharmacist, educator, doctor, nutritionist, and chef.
I control all aspects of his environment down to the smallest detail."
this was so true for me today.
dealing with medical doctors that want to put a band-aid on everything...and when i question that with the knowledge i've gained...well, they admit to doing what the "book" says.
*sigh*
Alaska on my mind
12 years ago